Hey everyone, So in my last post, I talked about why I decided it was important to see a geneticist to get a more pinpointed hypermobility diagnosis. I had a virtual visit with Dr. Rohanizadegan, along with a genetics counselor who helped to do my intake. Normally, of course, genetics visits are done in person, … Continue reading My official hypermobility diagnosis
Hey everyone, Many of you have been asking recently about how I was diagnosed with hypermobility. The way our healthcare system works here in the US, a geneticist is the only type of specialist who can officially diagnose a hypermobility disorder. I actually had an unofficial diagnosis in 2019, because I ended up at a … Continue reading My genetics consultation for hypermobility
Hey everyone, I originally put this post up on my social media, where I could just delete it right away if I changed my mind. But I was so moved by all of your comments, I decided to put it up here, too. I hope it resonates with you. I'm having a strange moment where, … Continue reading A bittersweet pause
Hi everyone-- I just wrote this in response to a specific comment from a reader, however I thought it was so important, I wanted to put it in its own post. As you may know, in the past year I have finally begun to understand a genetic condition I now know has affected me throughout … Continue reading Knowledge is power: Find the right specialist who understands your issues
Hi everyone, So this post picks up where my last post left off... where a doctor told me, at age 19, that I needed to "always keep your muscles strong... or else you're going to have a very difficult life." I didn't understand what he meant, didn't understand that sorrowful, grave look on his face. … Continue reading My hypermobility history, Part 2: “You need to always keep your muscles strong”
Hello hello everyone! In this post I wanted to clarify another concept readers often ask me about. If you've read through my story, you probably know that a big turning point in my healing came in the summer of 2016. I had been struggling with SI joint dysfunction for five years at that point, and it … Continue reading Why I switched from chiropractor visits to the Muscle Energy Technique (and finally got better!).
Hi everyone! As you may know, one of the treatments people often consider for SI joint dysfunction is prolotherapy. https://www.youtube.com/watch?v=6NsgU4FVYOA Prolotherapy is a relatively new, and still somewhat experimental, treatment to try to help ligaments heal. It can be used on any injured joint, not just the SI joints. Basically, a physician injects a solution … Continue reading Julie’s success with prolotherapy 🙂
Hi everyone! So... our SI Joint Discussion Group has been going really well (be sure to check it out, if you haven't already!). However, a few of our recent conversations have made me realize I really need to write one of the posts I've been meaning to write for a while, on some of the genetic conditions … Continue reading Genetic conditions that can cause SIJD
Hello everyone! In this post, I wanted to follow up on a super fascinating concept that my new PT, David, and I talked about in my first appointment. It's the concept of a neurotag. Basically, a "neurotag" refers to your brain's coding language for a certain type of memory or experience. As I explained in … Continue reading Pain Neurotags: how the nervous system protects us from injury
Hi everyone! So... this is really cool. You know how I've been saying for a while that I think the chiropractic profession has something to offer, but I wish they were more closely aligned with mainstream medicine? Well... here is a great example of exactly that. (This is another post that's for me and for you, as … Continue reading Integrative Spinal Research (a collaboration between chiropractors and mainstream medicine!).